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Fucking terrible. His chances of survival are, statistically, slim. But he's young and ready to fight. He's qualified for a drug study and will get into more if this one doesn't work out. I cannot and will not live without my husband.
His folks are coming tomorrow. He's going to explain it all to them then. He was crying today thinking about it. |
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Let me preface this by saying that I'm sorry that I've neglected my LJ.
Okay, Persephone's 3 1/2 now and still basically not speaking. We took her to her doctor who ordered genetic tests. She tested positive for a horrible genetic condition called Miller Dieker Syndrome. She's had a brain MRI but doesn't see the geneticist until the 28th of this month or the neurologist until the 23rd of next month.
Last month, Joe had a lymph node swell up and started having back pain.
He had the node out and there was a metastatic melanoma in it.
On Friday, we went in for a PET scan. About an hour after we got home, we were called back into the ER and told that Joe needed to pack a bag. They'd found a tumor on his T7 vertebrae. They did an MRI and it showed that the tumor had burst out of the vertebrae and was in the spinal canal. Fortunately NOT in the cord. The neurosurgeon, after asking all sorts of questions and having Joe do leg moves and such, decided that we could wait a few days for the surgery. We're going in on Tuesday to schedule the surgery and get an explanation of what to expect from Dr. Suliman.
Today, the oncologist called and told Joe that the PET scan revealed three cancer sites. The vertebrae, some lingering cancer where the left arm lymph node had been removed and some in the right armpit lymph node. We're thinking that this is probably good news. At least better than hearing "there's also cancer in all your major organs etc..."
Until Joe has his surgery, he has to be VERY careful. If he should happen to fall down, the spongy, cancerous vertebrae would not protect his spinal cord and he could easily be made paraplegic. Because of this and since he is still in a great deal of pain, we have him pumped full of percocet and on bedrest.
My mom came in on Saturday to help out with Persephone through as much of this as she can. We discovered on Friday that having a three year old stuck in the ER, bored, tired and hungry all day and night is not something we should ever, ever do again. she and I were evicted from the waiting room twice.Current Mood:  scared |
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Embedded video from CNN Video |
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The gist of the story is that two divorced brothers got together and abducted all their children at the same time. They are both armed and may be in or on their way to Syria (scary itself). If you could pass on the website, it might help.
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| » geeked |
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Aug. 6th, 2008 @ 04:41 am
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| » September 9th can't come soon enough! |
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Neal Stephenson has a new book coming out!!!!!!!!!!!!
May. 30th, 2008 @ 01:25 am
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| » Potty training: day 1 |
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Put Persephone in those "you feel the pee" pull-up (aka: pain in the ass for parent to change)training pant things, last night.
I gave her the day to feel uncomfortable every time she had a movement or urinated then, tonight, put her on the custom-painted, hello-kitty potty chair (complete with magazine rack and TP dispenser). She began crying as soon as her bare little butt hit the seat. As soon as I backed away, she pulled her training pants up just far enough to walk, scooted up to the door and peed on the floor.
Now she's sitting next to the computer with a bucket on her head.
This is not going to be as easy as I had hoped.
Apr. 29th, 2008 @ 11:03 pm
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| » RIP |
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Apr. 7th, 2008 @ 04:56 am
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| » She's getting so big! |
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Persephone nearly fits in Daddy's shoes!
Okay, maybe not so much the mens size 12's.
But my goodness, the child is growing! 
And she's turning into more of a goofball (mostly in the good way) every day.
Apr. 4th, 2008 @ 01:44 am
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| » cooper blog |
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This no-talent, whiny, spoiled, arrogant little twerp on Cooper's blog pissed me off to the point that had a melt down. Now I feel like an ass and am avoiding the place. There are many, MANY web communities where meltdowns and nastiness are acceptable. Cooper's blog is not one of those places. People there tend to be civil.
I thought I could be too.
Guess not.
Mar. 29th, 2008 @ 01:58 am
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| » No more gallbladder |
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Well I had my gallbladder out on Tuesday. It went smoothly and I was back home in no time, crashed out on the sofa.
Mom stayed until today helping with Persephone. We did a fair amount of running around. Yesterday we hit the vet (mom had to bring eight kittens with her) with a dying kitten. It was the first time I'd seen my vet since before evacuation. 16 of his clients died in the levee failures. One left a message written in lipstick on a wall before she drowned. The message was to Dr. Grisoli, telling him what she wanted done with her pets. The water was rising and she knew she was going to die. Poor Dr. Grisoli has to live with that.
After the vet (the kitten died this morning), we went to the quarter and did a LOT more walking around than I should have. I was pretty wiped out today.
Being a major idiot, after mom left and while Joe was at work, I lifted Persephone twice. I'm not supposed to lift her for another 10 days. I'm feeling it, but don't think I ripped any sutures.
It's amazing how good I've felt, so soon after having it out! I haven't even taken a vicoden today!
In other news, I got a strange email from LiveJournal, warning that I had to delete an old entry. Apparently offering to sell part of my liver is against LJ rules. Someone reported the entry to LJ. How strange. Not that anybody wants it at the moment, as my stony gallbladder spat so much bile back onto the thing that it's probably going to be a month before it's healed itself.
Feb. 24th, 2008 @ 01:29 am
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| » eBay nut job |
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http://myworld.ebay.com/susanstallfashions/
This nut job sold a skirt to a friend of mine and mismeasured it. No big deal, my friend tried to work it out with her. She ended up sending her a bunch of bizarre photos of her mismeasuring other items. My friend decided it wasn't worth the hassle to pursue it, and dropped the matter.
The woman then left her a negative feedback AND started emailing people bidding on her items, slandering her and telling them not to do business with her.
Steer clear of this nut job!
Feb. 8th, 2008 @ 10:46 pm
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| » userlands |
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Nov. 3rd, 2007 @ 09:08 pm
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| » grrrrrrrrrrrrrr |
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Oct. 22nd, 2007 @ 03:56 pm
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| » Just reminded again... |
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that if we hadn't decided to evacuate at the last minute just over two years ago, this little person  would be nothing more than a decaying fetus in my rotting, waterlogged corpse.
Kind of puts the crap we're going through now into a bit of perspective.
Oct. 9th, 2007 @ 03:15 pm
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dynomoose's journal
